I am so blessed

Well, it has been awhile. Let's see if I can tell you what has happen since my last post. On the 16th of July we went to Shreveport (about 3 1/2 hours from my home) to get a heart cath for my husband. After sitting in the waiting room all day finally got a room around 4pm to do the heart cath the next morning because did not let the lab know we were there, even after asking several times if cath lab knew we were there. Then after cath the next day we were told he was in no shape to go home and maybe not get back safely so we had to stay so they could observe him and take him off Plavix so he could have triple bypass. Well, triple bypass happened on the July 23 with great success. In the meantime I had not received my packet from National and miss the 1st conference call while sitting in the hospital. But there will be another one this month and I will be able to make it Lord willing. Stayed another week in Shreveport after the surgery. Mine you we went prepared for a night stay and spent 2 weeks. I had great people to come to my rescue. Eating all your meals in the cafeteria gets very expensive. Lord only knows how much we spent just on food. No commentary meals there. Anyway go home and we wanted to see our great granddaughter that we had not seen since her birthday on the 5th of July. So we kept her for 4 days. Took my packet to the Alz. Ass in Monroe and filled it out and faxed it. Got a call from Ruth wanting to know if I would consider being on the Alz task force for La and was and am excited. It is a great honor to be nominated by the Alz Ass and be appointed by the Governor. As Lynn my daughter said some good things have really come out of me having Alz. I just want to make sure if there is not a cure when I kids get older they will have it easier than the ones before them. Thank you Als. Ass., thank you Ruth. Mainly thank the Lord for allowing me to be able to do this. Sue

Waiting

Well, I got my letter from National, now I am waiting for my packet. Diane a friend of mine with dementia called to say she did not get accepted. Diane I was looking forward to you teaching me how to knit socks. lol Really I was looking forward to seeing more of you and getting to know you better. Sorry. Thanks Kris for your kind words. I hope life has not got to crazy yet. Good luck with Allen's wedding. We are going to my daughters in Frisco, Texas Thursday for a few days. Its my grandson's birthday (7-13). Looking so forward to it.

Look out world here I come

Hey, okay maybe not the world but where ever I am needed. I have been chosen to be on the National Alzheimer's Advisory Board. I am excited. Stacy our director for my area in Louisiana called me with the news Wednesday. I am patiently waiting for my packet from National. Nay, I do not know what the word patient means. lol I am waiting, checking the mail everyday. I hope the first meet and greet if there is a such thing is after Jesse's heart cath on 7/21/2008. With my luck that will be the day I am suppose to be somewhere. It's been a quite summer so far but I am sure it will not be so later. I am excited about alot of things dealing with National. Get to meet new people, getting to educate others, just the whole thing about being chosen is an honor. So say a little prayer for me and my family. Pray for Jesse. He understands me better than anyone and he needs to stay well. I told him I would beat him back to life if he died on me. lol. While cleaning off my computer table I found this: Do not follow where the path may lead. Go, instead, where there is no path and leave a trail. That is what we as people with dementia of any kind are having to do. There is so much how there that people have no clue about what dementia is all about.

Quite

It has been quite this week. Stayed close to the house. With the price of gas can't hardly afford to go anywhere anymore. It takes all your money for gas anymore. At least I have a good stash of yarn and thread to keep me busy. Had our support meeting Thursday. It was good. I enjoy talking and letting who ever is there talk and get things off their chest. Sunday is father's day and I have no clue what to buy daddy. He has been so good to my kids. People that have not know us our entire marriage can't believe he is their stepdad and not their real dad. But don't let my girls hear anyone say he is not their real dad they will tell you otherwise. I have really been lucky when I was introduced to Jesse. Guess I will go. Hug someone and let them know you care. Until next time. Sue

What a week

Started out with my love and joy, Jessie, my 10 month old great grandchildren. I kept her til Tues. because her mother was admitted to hospital with the lost of the child she was carrying. Then Thurs. we headed for Alexandria for a Dementia Conference, put on by Alzheimer's Association. I was on a panel to discuss my story. That was fun and I love to let people know when they see me they are looking in the face of Alzheimer's. I am not this mean, agitated, violent person. I try to speak softly, think about my words before I speak. Do they always come out correct, no. Joyce Simand was our speaker and she was wonderful, this is her. Jesse and I went to supper afterwards getting us back home around 11pm. Then I got up took my bath and headed for Alexandria again Friday morning. The conference in itself was wonderful. I was interviewed by two television stations, KALB and KALX, that is me on the right. It's funny they ask all this information and from what I heard there was hardly any part of the interview on the news. Things like the bill we are trying to get passed. I started thinking this morning I bet they thought that is all the Association wanted interview for, it wasn't. I said so much more. Yes I did push the bill. I want to know when the time comes and I end up in the nursing home, I want to know they have been trained to take proper care of me. Well, anyway on the way home I had car trouble. Made me a little stressed, but I finally got home after several phone calls to Jesse. I was so tired but I forced myself to stay up because I knew if I went to bed I would not sleep all night. Jesse woke me with a cup of coffee at 7am. He left and back to bed I went and slept until he came back at 11:30am. That is what happens when I have to really think on my feet alot. I can handle it while its going on but crash when it is finished. My poor old brain says "please stop I need to be reintergized. Tomorrow I will be fine. All in all it was a great week. Have a good night. Hug someone and let them know you care. Sue

*******Can you get the idea I am going to have to work on this picture thing. First time I have attempted. Sure I will get better.LOL

wandering mind

I was reading Leah at ouralzheimers.com and she was talking about her my wandering while she was doing something and she would sorta bounce here and there. That is me. As long as I can concentrate on what I am doing I can finish that project BUT if I get up to do something else then what I was doing is probably shot. A simple thing as getting up going to the bathroom can change the course of what I was doing and what I will be doing after the bathroom visit. I have sooooooooooooooo many projects I have started. I keep thinking I am going to get back to them and finish them. Some I do some are still there. Even with knitting and crocheting it takes me so long to finish a project because if I start thinking about something else while I am knitting or crocheting I have to go back count, read pattern, count again maybe several times before I can get back on track. Never really thought about it until I read her blog. Well this is my insight for today. Have a nice night. Hug someone and let them know you care.
Sue

Lazy week

Went to our support group Thursday. It was great. Had a new guy there and we had a good time talking. When Fannie gets back from vacation we are suppose to make a few changes, hopefully for the better to draw more people with early onset/early stage into the group. There were 3 of us Thursday which is kinda good when we have someone new that needs to talk. I have stayed close to the house this week and crocheted and knitted. I have tried to finish some projects and start new ones. I want to sew me a new purple jacket and black dress before I go to Alexandria to talk on the 5th of June. Jesse and replanted my mosquito plants today. We hope to try them out to see if they do indeed keep the mosquitoes away. Guess I will talk later. Hug someone and let them know you care.
Sue