I am back, now if i can just remember where i am back from

well, it has been awhile. so many thngs have changed. mainly i lose my oldest son. it has really taken me for a loop. i love him so much. the what ifs is really driving me crazy. my alzheimer's has really taken a nose dive. i try not to stress but that is a useless effort. i see him and it takes my breath away. we had gotten so close in the last few years. i lose my mother last year and the pain with losing my son is so far out there that there is no comparison. we no longer have a chapter here and i am here alone now. no more speeches, no more interviews, no more getting the word out. i feel like a redheaded step child. i keep busy sewing, crocheting, knitting, whatever it takes to keep my hands going.

What a great Thanksgiving

Wednesday before Thanksgiving I received the most wonderful news. I had been trying for months to get into a case study with a drug that stops Alzheimer's where I am at. They had to do a Cat scan Tuesday b/c I was diagnosed with vascular dementia and if this was true I could not get in the study. The results came back that I did not have vascular dementia it is all Alzheimer's. Somebody else may have been upset with that news but I was so excited I cried. For a chance to stay where I am right now and not get worse is great. Now for the drug to work. YEA! I had a wonderful Thanksgiving, up until Lynn's accident Thursday night. Oh yea, I start my first visit to the research clinic Thursday Dec 3. I am including a picture of me, Lynn, Chelsea, Angel and Susie at the 2009 Northeast Louisiana Memory Walk.

Hey ya"ll

It's been so lond since I sit down and wrote on my blog. I am hanging in there. I finished the National advisory board in July, I think, and the La. Task Force in Oct. I try to stay busy on a local level now, every chance i get. Here are 2 newspaper articles printed this month. They miss quoted Sandy about not being able to stop Alzheimer's, they left out the word not after can. Other than that I have really been trying to get the word out.
http://www.thenewsstar.com/apps/pbcs.dll/article?AID=2009911060313, http://www.thenewsstar.com/article/20091115/NEWS01/911150306/Alzheimer-s-disease-touches-many.

Sal at www.whimsydoodlegraphics.com has some new purple ribbons for those of you that machine embroidry, so stop by and look around. I really have been pushing other companies to remember us next year for National Alzheimer's Awareness Month.

Till later. Hug someone you love. Sue

National Alzheimer's Awareness Month

http://www.youtube.com/watch?v=nf6PEuLvJxw
I am so proud to be a part of this. Sue

Life

Well, it's been awhile since I wrote. I think about writing then I get sidetracked and forget about it. Alot has happened since my last writing about me including my Alzheimer's getting worse. I have been under alot of stress lately and the last month has proven stress is not good with Alzheimer's. My mother passes away a couple of weeks ago after a couple months of amazing the doctors by being taken off the vent and living more than a couple of hours as they predicted. My youngest son has gotten married and until a couple weeks ago refused to move out. My oldest daughter is stressed out carrying for her mother-in-law with Alzheimer's and taking care of her granddaughter, so my next to the oldest and I are taking turns caring for the baby (2 year old). I finished my year with National and we are wringing down the task force. It has to be finished to present in Sept. I am so thatnkful for the year I had the priviledge to be on National, it was very rewarding, and I have to admit the third Tues seemed strange not doing a conference call. I am trying to get in a clinical trial study. I have to keep getting involved or else I will go down even faster. I feel like I am in a race to do so many things that I do not have time to do. Oh well that is it for now. Don't forget about the memory game at the bottom of the page.

FREE $$$

I found this on the www.alzquilts.org, FREE $$$. This is a great way to help raise money for alzheimer's awareness. Please stop by and check it out. Thanks Sue

Looking my future in the eye

I am sitting with my mom in the hospital. She has Alzheimer's along with other medical problems. They did a biopsy this morning. Back to her Alzheimer's, yesterday I spent the day listening to the way I will be one day. She was so out there. One minute she knew who I was and then she thought I was her sister. My brother has been dead for years but yesterday she thought he was 21 looking for a job. Then she thought I was dead and my grandparents were in heaven watching over me. The list goes on and on. I was able to handle all of it but I worry that my kids and Jesse are not going to be able to when I get to that point. I will miss my first task force meeting tomorrow. Guess I will close for now. Hug someone and let them know you care. Sue